No Anna, No Dance!

Today is Monday and Anna is not having class tonight. But I have to prepare for chemotherapy tomorrow morning. This involves having blood work done early this morning and a visit to Dr. Gullion at 10:00. So I arrived at Meris Labs at 9:15 A. M., and thankfully, I had my lap top with me so that I could get some work done.  I didn’t get to see Dr. Gullion until 11:15!

We discussed the protocol and my blood tests. He thought that in my situation, it was a good choice and he wished more bladder cancer patients consulted him before they had a radical cystectomy, so that at least a bladder sparing protocol could be attempted. Although my white blood count was the lowest they had tracked, it does not inhibit continuing the protocol. So, tomorrow, we start again, but for the last time.

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Finally Feeling Better

I woke up twice this morning. The first time was the to sprinkler system in the back yard beginning to water the plants. The second time was when the phone rang. Now I am up and feeling better than I have for days.

During the night, I got some answers to the questions I raised yesterday about the foreground thoughts and feelings. I started thinking about what exactly was going on and I remembered two schools of thought about it.

The first school of thought comes from the teachings of the enneagram. In this school of thought, the we function from three centers of intelligence: the physical or body center, the emotional center, and the intellectual center. These are also referred to as the belly, heart, and head center, respectively. Because we function from these three centers, we have bodily based experience impinging on our consciousness whenever we feel a slight pain or discomfort. We have an emotional experience whenever our feelings are triggered. Finally, and probably most of the time, we are bombarded through our mental center with thoughts, memories, plans, images, dreams (really another type of image), and so forth. In addition, we must note that energy follows attention. That is, wherever we place our attention, our energy will follow. If we are focused on a goal we want to accomplish, we may be able to place all of our attention on that goal.

We can actually create pretty much at will each of these experiences. For example, don’t think of an elephant! What happened? You probably thought about an elephant and had an image of one in your mind. So basically, this is the contents of the mind, according to the enneagram.

The Buddhist philosophy about these matters is surprisingly similar, although it doesn’t deal with three centers of intelligence. In The Art of Happiness, Myrko Fryba talks about the four levels of experience on page 88:

  1. Immediate experiencing of real events, processes, and states (and the feelings and sensations associated with them) bodily taking place in the present moment.
  2. The bodily experienced meaning of represented (remembered) events, relations, constellations, situations, and scenes (and the feelings and sensations associated with them) that have led to current states of feeling and alterations of consciousness.
  3. Conceptual thinking related to the flow of immediate experiencing or to the felt meaning of entire situations, which are presently happening. From this thinking are derived matrices and programs for apprehension and action (to the extent that they are consciously accessible and thus also “thinkable”).
  4. Conceptual thinking whose content has no relationship to the current state of the thinker and thus which has no conscious relationship to experiential reality. This could be a kind of non-reality-related babbling that is unconsciously motivated and directed, or mechanical data processing (for example, calculation), or it could also be wise reflection on rules and programs with the help of the meta-language of Abhidhammic algebra-in other words, planning and coordinating of liberational strategies. The key point here is that this level of experience has no present bodily anchoring in reality.

Later, when describing Satipatthana-Vipassana exercises, he refers to these as the four foundations of mindfulness:

  1. Contemplation of the body (kayanupassana)
  2. Contemplation of the feelings (vedananupassana)
  3. Contemplation of consciousness (cittanupassana)
  4. Contemplation of mental contents (dhammanupassana)

When practicing mindfulness meditation, one becomes aware of the different categories of experience and systematically assigns what I have called “foreground” material to one of the categories and returns to concentration on the object of mindfulness. If the experience is related to light, color, sound, noise, warmth, movement, trembling, itching, stinging, pressure, lightness, etc., it is assigned to the body. If the experience is pleasant, enjoyable, pleased, amused, bored, sadness, pain, indifference, etc., it is assigned to the feelings. If the experience is concentrated, scattered, tense, greedy, hate-filled, freed, etc., it is assigned to consciousness. Finally, if the experience is thinking, wishing, planning, intending, trust, doubt, knowledge, etc., it is assigned to mental contents. One tries to make the assignments as quickly as possible and return to the object of mindfulness.

My wife and I went to the Center for Attitudinal Healing together tonight. I went primarily because she wanted to go and I am not sleeping well, so I thought I’d go. I was deeply moved by the experiences shared by the members of the group! I felt compassion and understanding come to the foreground of my consciousness, and I realized that my side effects from chemotherapy and radiation are pretty slight compared to what some of the people are facing. I did a short sharing of my treatment plan, Dr. Halberg’s surprise statement, and a few other things, but I got more out of listening deeply to other people.

>>>Next…

Art of Happiness: Teachings of Buddhist Psychology

More Down Time

I haven’t written much in the past few days because I am still recovering from the last round of chemotherapy and radiation. I spend most of the days lying in bed, reading, and trying to maintain mindfulness. I feel a bit nauseous all the time. Some time I have tremendous gas pain, but most of the time, I just lie in bed and recover. It’s not very exciting, but it sure beats the alternative of radical cystectomy!

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The Second Day of Chemo

Since there is no radiation today, the second day of chemo went rather smoothly. by 11:45, I was re-hydrating and all of the chemotherapy was in me. Now I just have to wait until all the saline solution flows through.

I’m a little tired today and a little bored. The files I downloaded from NGC yesterday put me no further into testing my code, as it didn’t compile. I’ll have to try that again today.

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Conversation with the Rabbi!

This morning, Rabbi Nathan Seigel came by. We took a walk by the bay in Sausalito and talked about many things. When we arrived back at my house, we had “Jewish Penicillin” together. Then I found out that I had to have an X-Ray simulation run at 3:15. This conflicted with my oncology appointment, so I had to juggle the appointments.

The oncologist reported that my blood work was excellent and the everything was a “go” for chemotherapy tomorrow. The simulation turned out to be a simple taking of a few pictures and confirmation of the new blocks for the treatments tomorrow. The are going to irradiate a smaller area this time, and they had to verify all of the setting. The actual radiation dosage is less than before.

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A Midsummer Night’s Dream

My wife and I went to see a production of the ballet, “A Midsummer Night’s Dream.” Our friend’s daughter danced the leading role and she looked like a professional. I was very moved by the performance as a whole.

Today, however, has been as sad day for me. I woke up feeling very vulnerable and emotional. I am a little afraid of the next round of chemotherapy and radiation, but besides that, I’m sad that my energy has not returned to its normal level. I feel physically and emotionally exhausted most of the time, even though everyone tells me how good I look. Having cancer is such a drag. I really need to pull myself together. Writing helps. Mindfulness helps, but I feel some underlying sadness now that is hard to deal with. It could be that I am just doing too much since the last surgery, but I keep thinking about my disappointments in life. I know that these feelings are impermanent and that I’ll feel better soon. Maybe after dinner!

All day I had been thinking about Thich Nhat Hanh and how I’ve used mindfulness to keep calm. At one point, I was feeling that mindfulness had kept me alive, and I started to cry. I’m planning to attend a retreat with Thich Nhat Hanh in September in Santa Barbara. I explained all this to Dr. Rossman as we drove to a restaurant in Mill Valley. As we walked in, I looked over to the wall on my left and saw Reb Anderson, former abbot of Zen Center! I spoke with him briefly about my illness and about my mindfulness meditation. I had placed his name and that of the current abbot in my Wizard at the beginning of my illness, but I have never got around to calling either one! Now the word is out.

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Free of Cancer!

My first appointment this morning was with Dr. Gullion.  He was rather pleased that the induction phase of the Shipley protocol worked so well.  He was also a little concerned about the 3 mm growth that was cut out of the surface of my bladder. He basically said that that was the nature of my bladder, and I would have to be watched. Nonetheless, we are still on the Shipley protocol and we begin chemotherapy and radiation next week. The basic protocol is the same, with chemo on Tuesday, Wednesday and Thursday with 5FU and cis-platin, and radiation twice a day on Tuesday and Thursday. The whole process repeats itself after a week off. Then I am finished with the protocol. I plan to call Shipley today to discuss the situation with him.

My next appointment was with Leslie Davenport. My major concern in speaking with her was about the 3 mm tumor that was removed. I am still confused about how it could be there, with treatments I’ve had so far, but now it is removed and my bladder is free of cancer. We worked on the sadness I felt as a result of having some cancer removed, and I connected it with a desire for intimacy, especially with my wife. I apparently still need to work out some personal problems having to do with asserting myself, while maintaining a close and intimate relationship with my wife.

To celebrate my recovery, T. R. took me lunch at Insalata in San Anselmo. We had a very nice lunch, followed by a stroll by Gelato and a chat in the park. T. is very grateful for my recovery and very inspired by it.

All afternoon I felt extremely tired. I suppose it was from too much running around on Monday and Tuesday. Therefore, I’ve decided to try to take it easy today.

I went to the Center for Attitudinal healing last night and shared my happy news. Everyone was happy for me, and I continued to express my mission of presenting alternative methods as something to be done in conjunction with convention medical practice. I shared the T-Up information with one of the patients who seems to be reaching the point of no return. This patient has a choice for surgery for which the recovery period could be as long as the remaining of his life if he doesn’t have the surgery. The poor patient really has some tough decisions to make, and perhaps I can help him.

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Healing Support

April 3, 1997 – Healing Support

Today I went to Cancerport again. The group was once again quite small, so just about everyone got a chance to speak. People asked how I was doing, and I had a long opportunity to explain what was going on with me. Basically, I told them that I had not recovered as quickly from the second chemotherapy and radiation as the first, but mentally and emotionally I was doing quite well. I still have difficult periods with my elimination and a lot of tiredness. I explained how my meditation and imagery work kept my mind focused in my body and away from morbid thoughts. I explained how radical cystectomy was the standard of treatment and that I had decided to take charge of my own case by doing the Shipley method and just how that worked. I told them how I used the web to find out information about my disease and as a means of tracking my healing progress.

Someone then asked me about how I felt about having cancer. I proceed to explain that my father had bladder cancer and died at the age of eighty-six from it, but that he had had a tumor in his bladder for perhaps twenty years. I told them about my son’s metastatic Wilm’s tumor, and that it was another form of urinary track cancer. Then I explained my sister’s death due to Leukemia twenty-eight years ago and my mother’s osteosarcoma. Finally, I mentioned that all my aunts and uncles died from cancer. Thus I felt that I had a genetic disposition towards getting cancer and that the stress brought about by the loss of my job two and one-half years ago probably brought it on.

The discussion turned more towards the alternative treatments that I am using and I spoke about specifically about Michael Broffman and Marty Rossman as partners in my care with the Marin Cancer Institute. I tried to explain that one did not have to believe in meditation or imagery for them to work, even though several people insisted that some level of belief was necessary. So I explained that just a people go to work out at the gym to keep their physical bodies in good shape, they could learn to quiet their mind with a little practice. Wonderfully enough, other people with imagery and/or meditation experience backed up my mini-lesson on meditation, and I felt safe enough to share the insight about “healthy cells grow all by themselves.”

From there, I went to Gail Teehan for another Functional Integration session. It was tremendously healing, once again, and Gail and I shared a lot with each other about our lives and our personal growth. I love working with her because she’s so understanding and has such great hands. I bet she gives a hell of a massage!

Tonight I was supposed to meet my wife at M. C.’s house for dinner and a movie, but I really don’t feel up to going out again. I think yesterday was too much for me and I still exhausted from the long drive to Menlo Park.

Well, “enough for today,” as Bhagwan used to say!

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“Waiting is … Grocking in Fullness”

March 28, 1997 – “Waiting is … Grocking in Fullness”

Today we begin the long wait for the results of the induction chemotherapy and radiation therapy. Frankly, I am quite pleased with the results so far, and I am thankful for possibly adequate time to build up my immune system so as to eliminate all cancer cells, dysplasia, and atypia. Using Broffman’s protocol and other supplemental and conjunctive approaches, I plan to be free of cancer five weeks from now when I have my TURBT.

In case you have forgotten the above quote is from Robert Heinlein’s Stranger in a Strange Land, which is wonderful entertaining reading while you’re recovering from any illness.

This morning I had another wonderful guided imagery session with Leslie Davenport. The focus of the session was on what guidance I need to make it through this period of waiting. Most of what came up was being in the present with my breathing (“breathing in, I’m healing myself, breathing out, I’m clear of cancer”). The other part of it seemed to come from my past experience with my son. My friend B. C. and I performed certain magical rituals that I think had an effect on his health. I’m now on the lookout for such magical thinking. At the group session which followed my guided imagery, this concept came out in a drawing I made of a healing spot in the Ozark Mountains in Arkansas. Perhaps tuning into that healing spot well enough will do the trick, but I certainly want to do some more exploring.

I came home to nap and then had a visit with A Ce Diamond. I plan to do a web page for his non-invasive form of Body Sculpture. Stay tuned!

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Stranger in a Strange Land

More Chemotherapy, More Radiation

March 25, 1997 – More Chemotherapy, More Radiation

The second round of chemotherapy and radiation therapy began today. Aside from being a little late, it went quite smoothly. I especially enjoyed the visits of K. S. and Leslie Davenport. I spoke to Leslie about working with her doing guided imagery through the Humanities Program and Marin General Hospital. She suggested that I offer my services over the web. Watch for a new topic on services!

D. B. took me to my second radiotherapy of the day. We had a nice conversation about our common interests and she bought me a book by Sylvia Boorstein, That’s Funny, You Don’t Look Buddhist. I’m looking forward to reading it! As you probably know by now, I am a living example of a Jubu – a Jewish born Buddhist.

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That's Funny, You Don't Look Buddhist

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