Tag: TURBT

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A Day of Work

February 25, 1997 – A Day of Work

This morning, I resolved to fix some of the bugs that had been assigned to me. In doing so, there is often enough time to surf the web while programs are being compiled. During one such compile, I started looking for information on Dr. Stephen Sallan. He appeared on the ABC news cast last night to report on some remarkable achievements in the cure of cancer. I was really impressed with what he had to say, so I found his email address and fired off a message. The content of the message was as follows:

Dear Dr. Sallan:

I watched your presentation on ABC last night and I was really impressed. I was wondering if you wouldn’t mind answering a few questions. I’ll be happy to phone you if that is easier and if you provide your office number.

1. Could you please tell me the name of the agents you are using to achieve a cure? I was not able to write them down fast enough. I do remember that you use something that prevents cancer cells from constructing new blood vessels. Someone mentioned endostatin, but I thought it was after you spoke.
2. Have you done any tests with T2N0M0 bladder cancer? I have been diagnosed with such and plan to have Dr. Shipley’s protocol beginning on March 10. I’ve had two TURBTs. My guess is that you know his protocol very well. If not, I’ll be happy to send it to you, or you can find it on my website (see below).
3. Does your research have anything to do with concentrated Aloe Vera or Cesium Chloride? I have heard that these naturally occurring substances have great immune building properties. Do you know anything about them?
4. Are there any trials for bladder cancer using your methods that you know of?

Thank you very much for your attention. If you have a chance, please see my web site: http://yellowstream.org. Dr. Shipley’s protocol is available there.

I have found an interesting quote in Cancer as a Turning Point on page 95 that provides excellent support for my decision:

In contemplating the removal of an organ or organs, remember that Nature does not indulge in luxuries. As Galen wrote: “Nature does nothing in vain.” If it is there, there is a good reason for it. No substitute is going to be as good (Mother Nature knows best). An organ should be removed if the alternative at this time is completely unacceptable. You can always have it removed later. You can’t have it put back.

Other topics of interest from LeShan’s book are how to survive in the hospital and how to deal with despair. He also establishes four axioms for holistic health, which I quote:

  1. The person exists on many levels, all of which are equally real and important. Physical, psychological, and spiritual levels are one valid way of describing the person, and none of these can be “reduced” to any of the other. To move successfully towards health, all must be treated. All must be taken care of and gardened if health is to be maintained.
  2. Each person is unique. A valid program of treatment, whether it focuses primarily on nutrition, meditation, chemotherapy, or exercise must be individualized for each person. A standardized approach to a condition is not valid under this concept.
  3. The patient should be part of the decision making team. Each person in a program of holistic health is given as much knowledge and authority as he or she will accept.
  4. The person has self-healing abilities. Following the first three axioms helps to mobilize these abilities and bring them to the aid of the mainline medical program

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Home Again!

February 20, 1997 – Home Again!

The morning in the hospital was fairly uneventful. I continued to read and listen to tapes until Dr. Neuwirth showed up. When he did, he explained that he took more tissue out of the bladder wall and left me with a very thin membrane. To help the healing, he wanted me to keep the catheter in until Tuesday. However, he didn’t seem to find any more gross cancer during the TURBT. Although the catheter is rather uncomfortable, I was very excited that there was no more visible tumor in my bladder! He was even telling me to “fatten up” for the chemotherapy that was going to happen in three weeks. I got the impression that he was satisfied with my decision to go with the Shipley method.

I spent the afternoon completing the “mind story” on the practice pages and submitting my URL to the various search engines. Somehow, time seems to flow so much faster now. My guess is that once you are confronted with a life-threatening illness, you value each minute a lot more. For example, when I played tennis on Monday, I thought it was very precious time, as I don’t know when the next time I’ll be able to play. Another example: Mala’s cooking today seemed to be extra special.

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Another TURBT

February 19, 1997 – Another TURBT

I went into the hospital early this morning to have another TURBT procedure done by Dr. Neuwirth. I was taken into the operating room about 75 minutes early, along with Dr. Rossman’s pre surgery tape! This time, I was not given the opportunity to have an epidural. Instead, I had a general anesthetic. Luckily, I did not experience any side effects from the anesthetic.

My recovery was a little uncomfortable this time, probably because of the catheter, but maybe from the anesthetic. I was rolled up into my room about noon time and immediately started drinking. I wanted to flush out the disease from my bladder as soon as possible. In between visitors, I spent the afternoon comfortably doing “mind stories“, listening to tapes by Dr. Keith Block and Dr. Carl Simonton, and reading Love, Medicine and Miracles. Later that evening, E. M. and D. F., two of my favorite tennis partners, came by. It was so nice to speak with them about how I use tennis as a spiritual practice and introduces them to visualization and guided imagery.

My wife is very clever! She talked Dr. Neuwirth into letting me spend the night in the hospital, which is not normally done after a TURBT. I was grateful for the overnight stay because I don’t have to deal with a catheter until Tuesday.

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Treatment Delayed!

February 18, 1997 – Treatment Delayed!

Mala and I went to visit Dr. Halberg again today for a simulation run through of the radiation therapy that was supposed to have begun on February 25. However, Dr. Halberg had spoken with Dr. Shipley and was told that the chemotherapy and radiation treatments shouldn’t begin until three weeks after the TURBT. So, I’m off the hook for three more weeks! I wasn’t terribly surprised, because the protocol, itself says that registration begins three to four weeks post TURBT.

Dr. Halberg also reported that I had a urinary tract infection, and I was put on Cipro for the next two weeks.

Next, we went to Marin General Hospital to register for the TURBT tomorrow. While this was time consuming, it was not particularly unpleasant.

I spent most of the rest of the day preparing my legal documents, including a Durable Power of Attorney for Health Care, which is a good document to have for your own protection.

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More Resection?

February 13, 1997 – More Resection?

I called Dr. Hoffman this morning and spoke with him about the treatment of bladder cancer with cesium chloride and/or aloe vera concentrate, and he basically said that these were not to replace chemotherapy and radiation. This was confirmed by a later conversation with Michael Broffman, who knew of Dr. Hoffman, and told us that Dr. Hoffman’s protocol was something to consider at the end of the Shipley treatments.

Then we received a call from Dr. Neuwirth. He said that Dr. Gullion had called him about the Shipley method, which requires an additional transurethral resection of the bladder tumor (TURBT), which he wanted to schedule for next week. We spoke to Michael Broffman about this and he recommended that we talk to Dr. Carroll. After further discussions with Dr. Huang, Dr. Gullion, we finally received a call back from Dr. Carroll. He said that he was out of time next week and the week after, so he wouldn’t be able to do anything until the week of February 24. He suggested that I go with Dr. Neuwirth, whom he said was a competent surgeon and could do this job effectively.

The last time I had a TURBT, there was no plan to do anything other than a radical cystectomy. Now Dr. Neuwirth would go in with the idea of doing bladder saving therapy. This could account for Dr. Neuwirth’s apparent reticence to do the second round of resection.

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TURBT

TRUBT

January 27, 1997 – First Hospital Stay, Continued

My refusal to sign the operation afforded me another whole day of waiting. In the morning, I had visits from Dr. Belknap and Dr. Neuwirth, both of which were very helpful in pointing out the pros and cons of the alternative anesthetic methods, but I still hadn’t made up my mind. I wanted to speak with an expert.

Dr. Neuwirth tried to prepare me for the best case scenario, which would involve complete resection of the bladder tumor followed by quarterly inspections with a cystoscopy and possibly coupled with chemotherapy agents inserted directly in the bladder. I found this discussion rather informative, but would have preferred a more accurate reading of my tumor.

Since my daughter was ill, my wife couldn’t be with me the whole time, so I spent the day receiving phone calls and visitors, and listening to classical music, and Dr. Rossman’s tape. Since I couldn’t eat or drink, my thoughts continually turned to food, especially when my roommate ate his meals. In between time, I continued my meditation and visualization practices, which kept me from getting to anxious about the ensuing operation.

At around 3:00 P. M., my wife returned to the hospital, just in time for the meeting with the anesthesiologist. His name was Christophe Dannello and he was very nice. He carefully explained the various options, and with his guidance, I decided to go with the epidural.

TRUBT
Transurethral Resection of Bladder Tumor (TURBT)

Around 6:30 P.M., they came to wheel me off to surgery. I grabbed Dr. Rossman’s tape and headed off to the operating room. I was given a sedative intravenously and placed on the table. A moment later, a small needle was applied to my lower back and I was turned over and placed into position. The oxygen feeder was placed in my nose and my legs were positioned in place for the surgery.

Then… I was gone! I woke up in the recovery room and spent what seemed like only fifteen minutes there. I was taken back to my room and my wife was with me for the next half-hour or so. Then she had to get home to the children, so there I was, lying flat on my back with a catheter in me. I started to feel pain from the epidural and was given “candy” – vicodin. This controlled the pain.

I proceeded to do my “mind story” and had a fairly good night sleep until I was rudely awakened for vital signs around midnight. Luckily, the rest of the night was uneventful, even though I was leaking blood through my catheter.

Copyright © 2004-2018, Jerome Freedman, Ph. D.